Discover our Network of Fragile X Organizations and their websites

The aim of the European Fragile X Network is to provide support and information to families affected by fragile X syndrome and it’s associated conditions, Fragile X-associated tremor/ataxia syndrome and Fragile X-associated primary ovarian insufficiency.


Fragile X Syndrome is the most common known cause of inherited intellectual disabilities, it is a rare condition affecting approximately 1 in 5000 people in the general population  [more info].